Finally: The Immortal Life of Henrietta Lacks.

Yesterday, on an adventure that included accidentally finding the worst lamb gyro in Trinidad and Tobago, I found myself in a bookstore in a mall.

The selections are generally dismal in Trinidad for me, which is unfair since I have read much in my life and it’s hard to find things that appeal to me. Still, the name on that cover. Is it? Could it be?

I began thumbing through the pages when the clerk at the store asked me if I needed help, something that always boggles my mind, and I mentioned that I was wondering if this is the same woman who had cancer and whose cells continue to be used in research around the world.

To my surprise, the clerk said, “Yes, it is! One of our customers bought the book and when she came back she told me all about it!”. I was surprised that she knew. I’d been aware since Daniel J. Solove mentioned it in one of his books on Privacy, and this is a bit of a landmark.

More people should read Daniel J. Solove’s works on Privacy.

I have barely started the book, one that has been on my reading list for some time but I just never remembered to get in a world that comes at us so quickly. Keeping current on the world in many ways is important and impossible at the same time, and sometimes without the opportunity some things slip through the cracks. This was an opportunity.

The book is old by modern standards (2010; 13 years old) but Rebecca Skloot did a lot of ground research and took pains to quote people as they spoke to give us a window into the time period, which is before my own.

Henrietta Lacks even beyond her death continues to save lives – but she and her family never saw a penny (as far as I know right now). There is a lawsuit between her estate and Thermo Fischer Scientific Inc which I intend to follow up on as time permits.

Imagine someone publishing your grandparents DNA publicly. That seems like one of the more ultimate invasions of privacy.

It will be good to read the how in the when. Having barely made it into the book, I will say the author certainly has not stolen the time from this piece, which I think is an important thing for us to understand because without that, we can’t look at what’s happening now and understand some of the implications.

Whose Safe Space Is It Anyway?

Corporations have been creating “safe spaces” for themselves for a while, and while that can be read as either good or bad depending on how you feel about things, let’s just accept that as an objective truth.

Disney took things from the public domain and copyrighted their versions, making them as ubiquitous as their marketing – and then worked hard to close the door for others to do the same with their works which should have passed to the public domain.

The Sonny Bono Act, or Mickey Mouse Protection Act extended copyright to keep things from going into the public domain:

“…Following the Copyright Act of 1976, copyright would last for the life of the author plus 50 years (or the last surviving author), or 75 years from publication or 100 years from creation, whichever is shorter for a work of corporate authorship (works made for hire) and anonymous and pseudonymous works. The 1976 Act also increased the renewal term for works copyrighted before 1978 that had not already entered the public domain from 28 years to 47 years, giving a total term of 75 years.[3]

The 1998 Act extended these terms to life of the author plus 70 years and for works of corporate authorship to 120 years after creation or 95 years after publication, whichever end is earlier.[4] For works published before January 1, 1978, the 1998 act extended the renewal term from 47 years to 67 years, granting a total of 95 years.

This law effectively froze the advancement date of the public domain in the United States for works covered by the older fixed term copyright rules…”

Copyright Term Extension Act, Wikipedia, accessed on 16 May 2023.

Corporations acted in their own self-interest. Lawrence Lessig’s Free Culture was the first I read of it, but I don’t know that he was the first that noted it. They created a safe space for their copyrights while they had their roots in the public domain.

The world is full of other examples.

Bill Gates would dumpster dive and study code printouts, among other thing. As the famous founder of Microsoft, lots of people don’t seem to know that Microsoft didn’t start without understanding – and borrowing, if not buying – code from others. There’s nothing particularly shameful about it.

“The best way to prepare is to write programs, and to study great programs that other people have written. In my case, I went to the garbage cans at the Computer Science Center and I fished out listings of their operating systems.”

Bill Gates, Interview with Suzanne Lammers, 1986.

I think any programmer would disagree with the sentiment. Yet, the same Bill Gates who did that also wrote an open letter to hobbyists in 1976 that did not reflect that sentiment:

“…The feedback we have gotten from the hundreds of people who say they are using BASIC has all been positive. Two surprising things are apparent, however, 1) Most of these “users” never bought BASIC (less thank 10% of all Altair owners have bought BASIC), and 2) The amount of royalties we have received from sales to hobbyists makes the time spent on Altair BASIC worth less than $2 an hour.

Why is this? As the majority of hobbyists must be aware, most of you steal your software. Hardware must be paid for, but software is something to share. Who cares if the people who worked on it get paid?…”

An Open Letter To Hobbyists“, Bill Gates, cited in the New York Times archives.

Most people would say, “Well, he has a point.” And he did – in protecting a business model he was creating which kept people from being able to view the source code to learn from it. Was it a bad thing? A good thing? It doesn’t matter, it was a thing.

At the time, it was a bunch of scattered hobbyists before the Internet against a corporation that could afford lawyers and marketing. It was the wild, wild west of personal computing.

The above examples are 2 of many ‘negotiations‘ between the public and corporations, though with the increased political influence corporations have through lobbyism – and with money now being free speech – it’s hard to consider it a legitimate negotiation.

If you have 45 minutes, Pirates of Silicon Valley is worth watching.

The point is that corporations always do things like this, for better or worse and for better and worse. And with the emergence of artificial intelligence-like technologies, while the safe space of creators is being abstracted away into statistics. By extension, this also applies to the privacy of everyone’s data.

My thought is, the greater the wings, the more confident the bird should be where it roosts. If corporations are indeed made of individuals working toward common goals and are creating things, that’s great! But it should not come at the cost of competition, which is one of the founding principles of capitalism… which corporations tend to cite only when convenient.

“Do as we say. Not as we do.”

Facebook And Your Finances

broken suicidal pigJust as Facebook is recovering from the privacy concerns related to Cambridge Analytica, including threat of lawsuit from one UK group, is now even more interested in your data.

Facebook is after your financial data:

…Facebook already has smaller agreements with financial institutions, including PayPal and American Express, that allow users to do things such as review transaction receipts on Facebook Messenger. In March, Facebook launched a service that would allow Citibank customers in Singapore to ask a Messenger chatbot for their account balance, their recent transactions and credit card rewards.

It’s a strange world we live in where we trust those that have not been trustworthy in the past. ‘To err is human, to forgive is divine.’

Are you divine? I’m not. I’m sure, though, that connecting the accounts will require buy-in from consumers.

In Trinidad and Tobago, I’m sure it will mean more photocopies.

Facebook, Google, et al: It’s Not The Data, It’s The Context.

ContextsDylan Curran recently published Are you ready? Here is all the data Facebook and Google have on you – an article which should open the eyes of anyone who uses Facebook or Google.

It’s a good article, and it shows how much data people give up freely – who doesn’t have a Gmail account or a Facebook page these days? – but it’s lacking something that most people miss, largely because they’re thinking of their own privacy or lack of it.

I requested my data from the sites – Facebook had 384 megabytes on me, and my Google Data I will get on April 7th since I opted for 50 gigabytes. All this data, though, is limited to what I have done.

It lacks the context. We are all single trees in the forest, and these companies aren’t so much in the habit of studying trees by themselves. They have the data of the forest of trees. That context, those interactions, you can’t really download. The algorithms they have derive data from what we hand over so willingly because it costs us nothing financially.

So, while they can give us our data, and some companies do, they can’t give us someone else’s data – so we only get the data on that single tree, ourselves. We learn only a small amount of what their algorithms have decided about us, and while Facebook has a way to see some of what their algorithms have decided about you, they are not compelled to tell you everything about your digital shadow. Your digital shadow has no rights, yet is used to judge you.

What’s your context? That’s the real question. It’s what they don’t show you, what they have decided about you from your habits, that they don’t truly share. That is, after all, their business.

Know that, be conscious of it… and don’t be an idiot online, no matter how smart you think you are. Everything you do is analyzed by an algorithm.

The Property Tax of Trinidad and Tobago: Privacy

Property Taxes IconWith all the media coverage on the new (2017) Property Tax here in Trinidad and Tobago, it’s hard to pick one article out of all of them to get a cohesive idea of what it is. In fact, most of the articles I’ve seen have been devoid of facts and full of opinions – let’s just say that there is a communications issue.

Frankly, if the roll-out had been done with better communication, it would have been less the political football it has become.

I own property – a fair amount – and people know this, so they ask me about it. My land is agricultural, so the new tax is almost straightforward for me. Almost.

But who reads these forms? Who has access to these forms? With people being asked to take pictures of their property and give personal details, one of the main questions I have heard from more moderate voices revolves around privacy.

And there are privacy issues to consider with crime as endemic as the common cold, and allegations in foreign news:

A project that Cambridge Analytica carried out in Trinidad in 2013 brings all the elements in this story together. Just as Robert Mercer began his negotiations with SCL boss Alexander Nix about an acquisition, SCL was retained by several government ministers in Trinidad and Tobago. The brief involved developing a micro-targeting programme for the governing party of the time. And AggregateIQ – the same company involved in delivering Brexit for Vote Leave – was brought in to build the targeting platform.

David said: “The standard SCL/CA method is that you get a government contract from the ruling party. And this pays for the political work. So, it’s often some bullshit health project that’s just a cover for getting the minister re-elected. But in this case, our government contacts were with Trinidad’s national security council.”

The security work was to be the prize for the political work. Documents seen by the Observer show that this was a proposal to capture citizens’ browsing history en masse, recording phone conversations and applying natural language processing to the recorded voice data to construct a national police database, complete with scores for each citizen on their propensity to commit crime.

“The plan put to the minister was Minority Report. It was pre-crime…

The sole local article I saw on that was hereI admit I don’t read the local newspapers too much, so I might have missed a few other articles. 

Now, being sensible and intelligent, you’ll ask me how this all ties in to the question of privacy as related to the property tax information being voluntarily sent in. That quote isn’t about the reported 105 warrants to intercept communications with 1 arrest (Less than 1% success if you bother with math). We’re talking about other stuff.

We all know that there are issues with corruption – such as the open secret of passing bribes in the Licensing Office. Anyone who lives in Trinidad and Tobago knows that there is rampant corruption in government – which, to my understanding, happens to be the largest employer in the country. And if they can’t even pay their people, when there are meetings about not purchasing toilet paper, you have a security risk. You have a privacy risk.

The privacy is a legitimate concern. Who has access to this information? How will it be used in other ways? Who is speaking to the populace being comfortable about that?

Certainly, I understand that the government needs to build it’s data – the log books of old would take decades to computerize, and I do applaud the genius of crowd-sourcing from the populace… but… privacy.

I’m of low confidence.

And that’s the press of this entry.

A little ad lib below.

Some Personal Notes On The Property Tax.

Personally, I don’t like the idea of a property tax where one can forfeit property if one doesn’t pay it for 5 years. It’s a de facto tenancy to the State at that point, and I think that’s wrong. People pay stamp duty when they purchase, and many other taxes are levied.
However.
I also don’t like speed limits as they are in Trinidad and Tobago, but if I break them I get a ticket, so I obey them. I don’t agree to a lot of silly laws, but I also understand that a society of laws is necessary. I don’t have to like them.
I bring this up because a lot of people are saying that people shouldn’t submit their forms, particularly in grassroots meetings. It’s a matter of Civil Disobedience, I suppose, and I doubt that few people who are considering it know the story of Henry David Thoreau’s Civil Disobedience – about how he didn’t believe in the Church tax, and how he was thrown in jail. What many people tend to overlook is that he only got out of jail because someone came by and paid his Church tax for him.
I will not advise anyone to take this course of action. If the person or people advising you to do this will pay the $500 fine you’ll get for not submitting… well, you decide. It is the Law.

The Future Of Technology and Society (May 2016)

FutureIf you’re one of those who likes tl;dr, skip this post and find a tweet to read.

It has been bothering me. There are a bunch of very positive articles out there that do not touch on the problems we face in technology.

What I mean by this is that, since the early 1980s, I have been voraciously reading up on the future and plotting my own course through it as I go through long, dark tea-times of my career. It allows me to land where things are interesting to me, or where I can make a living for a while as I watch things settle into place. I’ve never been 100% accurate, but I have never starved and have done well enough even in 3rd world countries without advanced infrastructure or policy. Over the course of decades, I have adapted and found myself attempting to affect policies that I found limiting – something most people don’t really care about.

Today, we’re in exciting times. We have the buzz phrases of big data, deep learning and artificial intelligence floating around as if they were all something new rather than things that have advanced and have been re-branded to make them more palatable. Where in the 1990s the joke was that, “We have a pill for that!”, these days the joke is, “We have an app for that!”. As someone who has always striven to provide things of use to the world, I shook my head when flatulence apps went to war for millions of dollars.

Social networks erupted where people willingly give up their privacy to get things for ‘free’. A read of Daniel Solove’s 10 year old book, The Digital Person: Technology and Privacy in the Information Age, should have woken people up in 2006, but by then everyone was being trained to read 140 characters at a time and ‘tl;dr’ became a thing. I am pleased you made it this far, gentle reader, please continue.

Big Data

All these networks collect the big data. They have predicted pregnancies from shopping habits and been sued for it (Feb 2012). There’s a pretty good list of 10 issues with Big Data and Privacy – here’s some highlights (emphasis mine):

1. Privacy breaches and embarrassments.
2. Anonymization could become impossible.
3. Data masking could be defeated to reveal personal information.
4. Unethical actions based on interpretations.
5. Big data analytics are not 100% accurate.
6. Discrimination.
7. Few (if any) legal protections exist for the involved individuals.
8. Big data will probably exist forever.
9. Concerns for e-discovery.
10. Making patents and copyrights irrelevant.

Item 4, to me, is the largest one – coupled with 5 and 7, it gets downright ugly. Do you want people to make judgements about you based on interpretations of the data that aren’t 100% accurate, and where you have no legal protections?

Instead, the legal framework is biased towards those that collect the data – entities known as corporations (you may have heard of them) – through a grouping of disparate ideas known as intellectual property. In fact, in at least one country I know of, a database can be copyrighted (Trinidad and Tobago) even though the information in it isn’t new. Attempts are being made by some to make things better, but in the end they become feeble – if not brittle – under a legal system that is undeniably swayed by whoever has the most money.

If it sounds like I’m griping – 10 years ago I would have been. This is just a statement of fact at this point. I did what I could to inform over the years, as did others, but ultimately the choice was not that of a well informed minority but that of a poorly informed majority.

Deep Learning / Artificial Intelligence

Deep learning allows amazing things to be done with data. There is no question of that; I’ve played with it myself and done my own analyses on things I have been working on in my ‘spare time’ (read: I have no life). There’s a lot of hypotheses that can come from big data, but it’s the outliers within the big data that are actually the meat of any hypothesis.

In English, the exceptions create the rules which further define what needs to be looked at. For outliers in the data can mean that another bit of data needs to be added to the mix.

Artificial Intelligence (AI), on the other hand, can incorporate deep learning and big data. While an AI may not be able to write a news article that can fool an editor, I imagine it could fool the reading public. This is particularly true since, because of the income issues related to the Internet, media outlets have gone to pulp opinionated pieces instead of the factual news that used to inform rather than attempt to sway or just get more reads by echoing a demographic’s sentiment. Then it is shared by people of like-minded people on social media. It’s an epic charlie-foxtrot. 

People worry about jobs and careers in all of this with robots and AI, and a lot of white collar folks are thinking it will affect those in the blue collar jobs alone. No, it will not. There is an evolution taking place (some call it a revolution), and better paid white collar jobs are much juicier for saving money for people who care only about their stock price. 5 white collar jobs are already under the gun.

KFC and McDonalds have already begun robotizing. More are coming.

And then let’s discuss Ethics in the implementation of AI – look at what Microsoft did with their Twitter-bot, Tay. We have a large corporation putting an alleged AI (chatbot, whatever you want to call it) into a live environment without a thought to the consequences. Granted, it seemed like a simple evolution of Eliza (click the link to see what that means), but you don’t just let your dog off it’s leash or your AI out in an uncontrolled environment. It’s just not done, particularly in an environment where kids need ‘safe places’ and others need trigger warnings. If they didn’t have an army of lawyers – another issue with technology – they probably would have had their pants shaken severely in Courts across the world. Ahh, but they do have an army of well paid lawyers – which leads us to Intellectual Property.
Space Marines: Into the Future

Copyrights, Patents and Trademarks (and Privacy)

If you haven’t read anything about Copyright by Lawrence Lessig in the past decade, or Privacy by Daniel Solove, you’re akin to an unlicensed, blindfolded teenager joy riding in your Mom’s Corvette ZR1. Sure, things might be fun, but it’s a matter of time unless you’re really, really lucky. You shouldn’t be allowed near a computing device without these prerequisites because you’re uninformed. This is not alarmist. This is your reality.

And anyone writing code without this level of familiarity is driving an 18 wheeler in much the same way.

You need a lawyer just to flush a virtual toilet these days. I exaggerate to make the point – but maybe not. It would depend on who owns the virtual toilet.

You can convert any text into a patent application. Really.

Meanwhile, Patent trolls are finally seen as harming innovation. The key point here is that the entire system is biased toward those with more in the bank – which means that small companies are destroyed while the larger companies, such as Google and Oracle, have larger legal battles that impact more people than even know about it. Even writing software tools has become a legal battle between the behemoths.

‘Fair Use’ – the ability to use things you bought in ways that allow you to keep copies of them – has all but been lost in all of this.

Meanwhile, Wounded Warrior – an alleged veteran’s non-profit – has been suing other non-profits because of use of the phrase, ‘Wounded Warrior’. If you want to take the nice approach, they’re trying to avoid dilution of their trademark… at the cost of veterans themselves, but that doesn’t explain them suing two of their own former employees with PTSD.

And Here I Am, Wondering About The Future.

There are a bunch of very positive articles out there that do not touch on the problems we face in technology. Our technology is presently being held for ransom by legal frameworks that do not fit well; this in turn means our ability to innovate, and by proxy entrepreneurship, are also being held ransom. Meanwhile we have people running around with Stockholm Syndrome waiting for the next iPhone hand built by suicidal workers, or the next application that they can open their private data to (hi, Google, Microsoft!), or…

I can’t predict anything at this point. It used to be much simpler and, by proxy, easily controlled. The questions of whether to do something used to be an ethical question, but now we go to lawyers for ethics (a group that is largely not known for ethics – apologies to those who do). The governments institute policies biased by whoever funds the campaigns of politicians, or gives United States congress people nice things. It affects the entire world, and every few years I think it won’t last – it continues.

Too big to fail.

But out of all of this, I don’t mean to stop trying. I don’t mean to stop innovating, starting new businesses, etc. What I mean is – we have a lot of things to do properly to assure a future that isn’t as dim as I see it now, to assure that the kids who are hooked on realities that someone else created rather than what they imagined. Imagination itself needs to be revisited, cultivated and unleashed against all of this like a cool wind across the desert.

It cannot be done blindly. People need to understand all of this. And if you made it this far – congratulations – I offer that you should, if not share this, share the ideas within it freely rather than simply clicking ‘like’ and hoping for the best.

We cannot change things on our own.

As for myself – just surfing the waves as they come in, but I fully intend to build my house on a distant shore at this point.

 

 

 

Apple vs. FBI: Hedgehog Factor

Sonic the HedgehogOn the old site, I wrote quite a bit about the Hedgehog’s Dilemma and how it applied to social media. I didn’t write about my own experiments with code, what I found, etc. – and that’s because I didn’t fully understand what I found. I still don’t. But I think it’s appropriate to bring it up now in the context of Apple’s amazingly open battle against the government about backdooring it’s own phone. It almost sounds like forced incest when you put it like that. Give me about 4 paragraphs before I make the point, OK?

So, first, the Hedgehog’s Dilemma itself. I like what Schopenhauer wrote:

A number of porcupines huddled together for warmth on a cold day in winter; but, as they began to prick one another with their quills, they were obliged to disperse. However the cold drove them together again, when just the same thing happened. At last, after many turns of huddling and dispersing, they discovered that they would be best off by remaining at a little distance from one another. In the same way the need of society drives the human porcupines together, only to be mutually repelled by the many prickly and disagreeable qualities of their nature. The moderate distance which they at last discover to be the only tolerable condition of intercourse, is the code of politeness and fine manners; and those who transgress it are roughly told—in the English phrase—to keep their distance. By this arrangement the mutual need of warmth is only very moderately satisfied; but then people do not get pricked. A man who has some heat in himself prefers to remain outside, where he will neither prick other people nor get pricked himself.

This is the battle within social media and networks with their consumers and the government. It’s constantly shifting. Personally, I’m amazed at how much people give away to simply have social connections of convenience – but it somehow works. So we have people’s expectations and wants of privacy, varying from person to person, across a network. But privacy is also intimacy, and privacy is largely a matter of how much one wants to be intimate with someone else – not everyone else. So we’re lax about privacy because we don’t consider much of what we do to be a personal space.

Cross into that intimate space, and bad things happen. People get upset, talking about privacy. I suppose in myself, my intimate space is a vast wasteland and I take it more seriously than others do, projecting that into how I interact on social media and networks without actually sucking too much at it. It goes beyond settings hidden behind a gear icon. It’s how much you share, what you share, etc.

So I’m going to drag this home. What’s at stake is the government forcing Apple to backdoor – to create something that wasn’t there – their own device, where so many people now keep their intimacy.

The Hedgehog factor, you see, is intimacy.

 

 

The Pitter Patter of Digital Footprints

Golden TunnelAnything you have ever done online is a part of your digital footprint. The other part of your digital footprint is what other people and entities have determined your about you.

Some use this information to predict what you’re going to do even when you don’t know you’re going to do it. That’s fairly benign in the hands of marketers because all that will happen is that you’ll go broke buying things that you hopefully need… but likely just want because of ‘good’ marketing.

The increasingly granular bits of information out there might make it more toxic.  Old data hangs around, and while it may have representative of you at certain points, it may not represent you at this time.

I have that issue with LinkedIn.com and wherever I’ve posted my resume in the past. People still ask me if I want to do Drupal when, no, I don’t. But because of this latency of the information, I still get people with thick accents calling me about Drupal. This is an annoyance, but if it were something else it could be damaging. In fact, if I were looking for a job, it would limit me to what I have done rather than what I want to do. It would work against me.

So from my digital footprint, I cast Drupal in my digital shadow and it bytes me on the ankle. Why? Because I made the mistake of working with it for a while – and that, to headhunters who pay for old lists, means I’m still doing it well after leaving it behind for a year. Sure, we know that they’re cheap. That’s not the issue.

What is the issue is that I’m being judged based on data that is no longer relevant. It could just have easily been something else. It could be that I was accused of a crime that I was later found innocent of- and an employer might see that and decide that they don’t want to hire someone felonious. I boggle at writing an example of it because someone’s cheap bot might scrape it and think I did something wrong, when in fact, I did not. But it’s in there now, stuck in the head of a demented network. Like a bad song that plays only to me. Or you.

So when you’re making that little digital footprint sound in what you consider private, it’s not that private – and those little echoes will play until eternity.

Or everyone updates their databases.